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The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. This program is a key element of the Precision Medicine Initiative (PMI). Through advances in research, technology, and policies that empower patients, the PMI will enable a new era of medicine in which researchers, health care providers and patients work together to develop individualized care. All of Us is a participant-engaged, data-driven enterprise supporting research at the intersection of human biology, behavior, genetics, environment, data science, computation and much more to produce new knowledge with the goal of developing more effective ways to treat disease.
We have a genuine interest in the success of the All of Us project because of its personalized approach; focusing on individual variability in genetics, environment, lifestyle and socioeconomic determinants of health. This may advance the understanding of some of the major factors contributing to the health disparities experienced by the underserved. Nurses have the ability to discuss and explain the potential this type of project has to change the health of current and future generations. You can also join the study as participants! ANAC is proud to be one of 35 Community Engagement Partners in the All of Us project. Our role is to educate our members, who in turn may educate their patients and clients about this project. We think this is important so that the information gleaned from this project also reflects the health and wellness of people living with HIV, LGBT communities and people of color. We are all part of the future of health.
All of Us aims to build one of the world’s largest data sets for health research. This data will be accessible to all researchers, including ANAC nurse researchers. Follow the development of the data set and approaches to research priorities.
The All of Us Research Program is building a database to help transform the future of health research by equipping researchers with expansive health data from diverse populations, with a special focus on including groups underrepresented in biomedical research. Our current dataset includes information from more than 315,000 participants, more than three-quarters of whom are from communities that are underrepresented in biomedical research and about half of whom are members of racial and ethnic minority groups. All of Us is working to advance health care and science by inviting researchers—at all stages of their careers—to explore the All of Us Researcher Workbench. All of Us is committed to diversity in research, from our participant cohort to our investigators. We believe that research should truly be for all of us.
ANAC and AAHIVM hosted a webinar earlier this year with Sheri Scully, PhD, about using the All of Us Research database. Watch it here.